Zolgensma - Karpat.in.ua

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  https://www.facebook.com/kasler.miklos.hivatalos/posts/360015432417932 
 «Я став свідком зворушливого моменту, коли особисто познайомився з Анночкою, яка цього тижня отримала препарат генної терапії Zolgensma у дитячій лікарні «Бетежда». Хвора на СМА дівчина після лікування вже може повернутися додому», – написав міністр.
 Про Анночку Салцевич, у якої діагностували спинальну м’язову атрофію, ми писали у серпні минулого року. Відтоді сім’я пройшла довгий шлях: обстеження в Австрії та Угорщині, переїзд, лікування препаратом Spinraza. Аби врятувати дівчинку, об’єднали зусилля як на Закарпатті, так і в Угорщині.
 У квітні Уряд Угорщини заявив, що в окремих випадках держава сплачуватиме генну терапію препаратом Zolgensma вартістю понад 700 мільйонів форинтів. Через вік Анночки Салцевич позитивне рішення було під сумнівом, але в червні міністр людських ресурсів Угорщини Міклош Кашлер опублікував на своїй сторінці у соцмережі чудову новину про те, що маленька дівчинка матиме шанс жити повноцінним життям.
 Facebook/Magyar Nemzet/Karpat.in.ua
 
 [type] => post [excerpt] => Міністр людських ресурсів Угорщини Міклош Кашлер у дописі на своїй сторінці у Facebook повідомив, що закарпатка Анночка Салцевич отримала препарат генної терапії Zolgensma. [autID] => 2 [date] => Array ( [created] => 1626527640 [modified] => 1626526614 ) [title] => Маленька закарпатка отримала в Угорщині лікування надзвичайно дорогим препаратом Zolgensma [url] => https://life.karpat.in.ua/?p=64337&lang=uk [status] => publish [translations] => Array ( [hu] => 64280 [uk] => 64337 ) [trid] => din4423 [aut] => zlata [lang] => uk [image_id] => 64284 [image] => Array ( [id] => 64284 [original] => https://life.karpat.in.ua/wp-content/uploads/2021/07/annacska-kasler.jpg [original_lng] => 441729 [original_w] => 2013 [original_h] => 1342 [sizes] => Array ( [thumbnail] => Array ( [url] => https://life.karpat.in.ua/wp-content/uploads/2021/07/annacska-kasler-150x150.jpg [width] => 150 [height] => 150 ) [medium] => Array ( [url] => https://life.karpat.in.ua/wp-content/uploads/2021/07/annacska-kasler-300x200.jpg [width] => 300 [height] => 200 ) [medium_large] => Array ( [url] => https://life.karpat.in.ua/wp-content/uploads/2021/07/annacska-kasler-768x512.jpg [width] => 768 [height] => 512 ) [large] => Array ( [url] => https://life.karpat.in.ua/wp-content/uploads/2021/07/annacska-kasler-1024x683.jpg [width] => 1024 [height] => 683 ) [1536x1536] => Array ( [url] => https://life.karpat.in.ua/wp-content/uploads/2021/07/annacska-kasler-1536x1024.jpg [width] => 1536 [height] => 1024 ) [2048x2048] => Array ( [url] => https://life.karpat.in.ua/wp-content/uploads/2021/07/annacska-kasler.jpg [width] => 2013 [height] => 1342 ) [full] => Array ( [url] => https://life.karpat.in.ua/wp-content/uploads/2021/07/annacska-kasler.jpg [width] => 2013 [height] => 1342 ) ) ) [video] => [comments_count] => 0 [domain] => Array ( [hid] => life [color] => red [title] => Життя ) [views_count] => 6139 [translation_required] => 2 [translation_required_done] => 1 [_thumbnail_id] => 64284 [_edit_lock] => 1626516886:2 [_oembed_414d60c048935cb4a1f166a35fd78f27] => 
Egy megható pillanat részese lehettem, amikor személyesen találkoztam Annácskával, aki a héten megkapta a Bethesda...
Posted by Kásler Miklós on Friday, July 16, 2021
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We share the importance of his Presidency’s theme: Solutions through Solidarity, Sustainability & Science

Rest assured of our full cooperation ? ?? #IniDiplomasi pic.twitter.com/jOEwpuYot0
— Indonesian Mission UN (@indonesiaunny) June 7, 2022
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The Royal Swedish Academy of Sciences has decided to award the 2023 #NobelPrize in Physics to Pierre Agostini, Ferenc Krausz and Anne L’Huillier “for experimental methods that generate attosecond pulses of light for the study of electron dynamics in matter.” pic.twitter.com/6sPjl1FFzv
— The Nobel Prize (@NobelPrize) October 3, 2023
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After the blockade of Slovak carriers, the drivers decided to leave Slovakia through Hungary. It is reported that a queue formed here, and then trucks stopped passing altogether.⬇️ pic.twitter.com/InxRtsiVhh
— Alf Really 🇺🇦🇺🇲🇬🇧🇨🇦🇪🇺🇮🇱🇩🇪🇵🇱 (@vik8867dn) December 2, 2023
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Маленька закарпатка отримала в Угорщині лікування надзвичайно дорогим препаратом Zolgensma

Міністр людських ресурсів Угорщини Міклош Кашлер у дописі на своїй сторінці у Facebook повідомив, що закарпатка Анночка Салцевич отримала препарат генної терапії Zolgensma.

13:14 Липень 17, 2021

Життя 6139 1 хвилина