{"id":26150,"date":"2020-08-19T22:00:37","date_gmt":"2020-08-19T19:00:37","guid":{"rendered":"http:\/\/life.karpat.in.ua\/?p=26150"},"modified":"2020-08-19T21:59:42","modified_gmt":"2020-08-19T18:59:42","slug":"3-honap-maradt-a-karpataljai-annacska-megmentesere","status":"publish","type":"post","link":"https:\/\/life.karpat.in.ua\/?p=26150&lang=hu","title":{"rendered":"3 h\u00f3nap maradt a k\u00e1rp\u00e1taljai Ann\u00e1cska megment\u00e9s\u00e9re"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\"><strong>A <a rel=\"noreferrer noopener\" href=\"https:\/\/www.karpatalja.ma\/karpatalja\/kozelet\/harc-az-idovel-harom-honap-maradt-a-karpataljai-annacska-megmentesere\/\" target=\"_blank\">K\u00e1rp\u00e1talja.ma<\/a> \u00fajs\u00e1g\u00edr\u00f3i megl\u00e1togatt\u00e1k a mez\u0151gecsei Szalcevics<\/strong> <strong>csal\u00e1dot, akik v\u00e9gs\u0151 k\u00e9ts\u00e9gbees\u00e9s\u00fckben gyermek\u00fck megment\u00e9s\u00e9\u00e9rt a k\u00f6z\u00f6ss\u00e9gi oldalakon k\u00e9rtek seg\u00edts\u00e9get.<\/strong><\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"620\" height=\"330\" src=\"http:\/\/life.karpat.in.ua\/wp-content\/uploads\/2020\/08\/szalcevics.jpg\" alt=\"\" class=\"wp-image-26151\" srcset=\"https:\/\/life.karpat.in.ua\/wp-content\/uploads\/2020\/08\/szalcevics.jpg 620w, https:\/\/life.karpat.in.ua\/wp-content\/uploads\/2020\/08\/szalcevics-300x160.jpg 300w\" sizes=\"auto, (max-width: 620px) 100vw, 620px\" \/><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">Mez\u0151gecs\u00e9ben, a Szalcevics csal\u00e1dn\u00e1l j\u00e1runk. T\u00e1nya kisl\u00e1ny\u00e1val fogad minket. Ann\u00e1cska kezdetben k\u00e9rd\u0151en, kiss\u00e9 bizalmatlanul n\u00e9z, majd r\u00e1nk villantja mosoly\u00e1t, \u00e9s az anyuka megnyugtat: megtetszett\u00fcnk neki, m\u00e1r nem lesz rossz a hangulat. A kicsi tele van \u00e9lettel, vid\u00e1ms\u00e1ggal, besz\u00e9desek a gyerekszemek. Els\u0151re fel sem t\u0171nik, hogy b\u00e1rmi baj lehet, pedig a gyermek minimum 90 ezer doll\u00e1rra van az es\u00e9lyt\u0151l, hogy teljes \u00e9rt\u00e9k\u0171 \u00e9letet \u00e9lhessen. \u00c9s mind\u00f6ssze h\u00e1rom h\u00f3nap maradt az \u00f6sszeg el\u0151teremt\u00e9s\u00e9hez.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Ann\u00e1cska hat h\u00f3napos kor\u00e1ban \u00fclt, tartotta mag\u00e1t \u2013 mes\u00e9li az anyuka, azonban a tov\u00e1bbi fejl\u0151d\u00e9s elmaradt. A m\u00e1r bej\u00e1ratott tev\u00e9kenys\u00e9gek is neh\u00e9zs\u00e9get kezdtek jelenteni. Nem k\u00faszott, \u00e9s egy id\u0151 ut\u00e1n m\u00e1r nem \u00fclt \u00f6n\u00e1ll\u00f3an, nem tartotta a test\u00e9t. Az orvosok nem tulajdon\u00edtottak jelent\u0151sebb figyelmet az anyuka aggodalmainak, \u00e1m T\u00e1nya nem hagyta annyiban a dolgot. Hosszas kivizsg\u00e1l\u00e1sokat k\u00f6vet\u0151en Kijevben egy\u00e9rtelm\u0171v\u00e9 v\u00e1lt: Ann\u00e1cska gerinc eredet\u0171 izomsorvad\u00e1sban (SMA) szenved. Az ukrajnai orvosok lemondtak Ann\u00e1r\u00f3l, \u00e9s kijelentett\u00e9k T\u00e1ny\u00e1nak, hogy bele kell t\u00f6r\u0151dnie: a l\u00e1nya m\u00e9g k\u00e9t, maximum h\u00e1rom \u00e9vig \u00e9lhet.<\/p>\n\n\n\n<figure class=\"wp-block-embed-youtube wp-block-embed is-type-video is-provider-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe title=\"Harc az id\u0151vel \u2013 h\u00e1rom h\u00f3nap maradt a k\u00e1rp\u00e1taljai Ann\u00e1cska megment\u00e9s\u00e9re\" width=\"500\" height=\"281\" data-mhmlazyloadvideo=\"667dc9f43b4e6\" data-src=\"https:\/\/www.youtube.com\/embed\/38dsgA-QRr0?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><script data-plugin=\"mhm_lazyloadvideo\">mhmlazyloadvideo(\"667dc9f43b4e6\");<\/script><noscript><iframe title=\"Harc az id\u0151vel \u2013 h\u00e1rom h\u00f3nap maradt a k\u00e1rp\u00e1taljai Ann\u00e1cska megment\u00e9s\u00e9re\" width=\"500\" height=\"281\" data-mhmlazyloadvideo=\"6a22f133e25a5\" data-src=\"https:\/\/www.youtube.com\/embed\/38dsgA-QRr0?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/noscript><script data-plugin=\"mhm_lazyloadvideo\">mhmlazyloadvideo(\"6a22f133e25a5\");<\/script><noscript><iframe title=\"Harc az id\u0151vel \u2013 h\u00e1rom h\u00f3nap maradt a k\u00e1rp\u00e1taljai Ann\u00e1cska megment\u00e9s\u00e9re\" width=\"500\" height=\"281\" data-mhmlazyloadvideo=\"667dc9f43b4e6\" data-src=\"https:\/\/www.youtube.com\/embed\/38dsgA-QRr0?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><script data-plugin=\"mhm_lazyloadvideo\">mhmlazyloadvideo(\"667dc9f43b4e6\");<\/script><noscript><iframe loading=\"lazy\" title=\"Harc az id\u0151vel \u2013 h\u00e1rom h\u00f3nap maradt a k\u00e1rp\u00e1taljai Ann\u00e1cska megment\u00e9s\u00e9re\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/38dsgA-QRr0?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/noscript><\/noscript>\n<\/div><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">Egy ausztr\u00e1l orvossal folytatott konzult\u00e1ci\u00f3t k\u00f6vet\u0151en kider\u00fclt, hogy van rem\u00e9ny. Viszont azt horribilis \u00f6sszegben m\u00e9rik.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Ann\u00e1csk\u00e1n egy 200 ezer doll\u00e1ros m\u0171t\u00e9t, vagy \u00f6t 90 ezer doll\u00e1ros injekci\u00f3 seg\u00edthet. Ut\u00f3bbib\u00f3l az els\u0151 adagot k\u00e9t\u00e9ves kor\u00e1ig, azaz h\u00e1rom h\u00f3napon bel\u00fcl meg kell kapnia ahhoz, hogy ne szenvedjen visszaford\u00edthatatlan k\u00e1rosod\u00e1sokat a gyermek.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Noha T\u00e1nya \u00e9s a f\u00e9rje is hivat\u00e1sos katona \u2013 az apuka k\u00e9tszer is szolg\u00e1lt a terrorellenes m\u0171veletek helysz\u00edn\u00e9n \u2013, \u00e1llami t\u00e1mogat\u00e1sra nem igaz\u00e1n sz\u00e1m\u00edthatnak.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Az anyuka nem adja fel, a v\u00e9gs\u0151kig harcol a l\u00e1nya megment\u00e9s\u00e9\u00e9rt, \u00e9s b\u00edzik abban, hogy \u00f6sszefog\u00e1ssal siker\u00fclhet megv\u00e1s\u00e1rolni a kis Ann\u00e1nak a vil\u00e1g legdr\u00e1g\u00e1bb gy\u00f3gyszer\u00e9t.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Ha m\u00f3dj\u00e1ban \u00e1ll, az al\u00e1bbi sz\u00e1mlasz\u00e1mokon t\u00e1mogathatja a gy\u0171jt\u00e9st:<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u041f\u0420\u0418\u0412\u0410\u0422 \u0411\u0410\u041d\u041a<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">4731 2191 2130 3030<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0421\u0430\u043b\u0446\u0435\u0432\u0438\u0447 \u0410\u043b\u0456\u043a \u0413\u0440\u0438\u0433\u043e\u0440\u043e\u0432\u0438\u0447 (a gyermek apja).<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">4731 2191 2212 2207<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0421\u0430\u043b\u0446\u0435\u0432\u0438\u0447 \u0422\u0430\u0442\u044c\u044f\u043d\u0430 \u0412\u0430\u0441\u0438\u043b\u0456\u0432\u043d\u0430 (a gyermek anyja).<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">El\u00e9rhet\u0151s\u00e9g: +38 066-233-46-87 Alik (apa)<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">NEMZETK\u00d6ZI SZ\u00c1MLASZ\u00c1M:<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">SALTSEVYCH TETIANA<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">IBAN: UA053052990000026205890347414<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">ACCOUNT: 4731219121216257<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">BANK OF BENEFICIARY: PRIVATBANK<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">SWIFT CODE: PBANUA2X<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">A sz\u00fcl\u0151k magyarul, ukr\u00e1nul \u00e9s oroszul besz\u00e9lnek.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>A betegs\u00e9gr\u0151l<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">A spin\u00e1lis izomatr\u00f3fia vagy gerinc eredet\u0171 izomsorvad\u00e1s(angolul Spinal Muscular Atrophy, r\u00f6vid\u00edtve SMA) egy ritka \u00f6r\u00f6kl\u0151d\u0151 betegs\u00e9g, amit az SMN g\u00e9n hib\u00e1ja okoz, \u00e9s a gerincvel\u0151 mozgat\u00f3 idegsejtjeinek a fokozatos elveszt\u00e9s\u00e9t eredm\u00e9nyezi. Az idegsejtek pusztul\u00e1sa fokozatos izomgyenges\u00e9get, sorvad\u00e1st okoz a kapcsol\u00f3d\u00f3 izmokban. A leggyakrabban \u00e9s legel\u0151sz\u00f6r \u00e9rintettek a nyak \u00e9s a t\u00f6rzs tart\u00e1s\u00e1t v\u00e9gz\u0151 izmok, majd a l\u00e1b \u00e9s karok azon izmai, amelyek a mozg\u00e1s\u00e9rt felelnek, v\u00e9g\u00fcl a bord\u00e1khoz k\u00f6t\u0151d\u0151, l\u00e9gz\u00e9st t\u00e1mogat\u00f3 izmok.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Az SMA betegek \u00e1ltal\u00e1ban teljesen norm\u00e1lisnak t\u0171nnek sz\u00fclet\u00e9skor. A t\u00fcnetek a legs\u00falyosabb forma (1-es t\u00edpus) eset\u00e9n h\u00e1rom h\u00f3napos kor k\u00f6rny\u00e9k\u00e9n jelennek meg el\u0151sz\u00f6r. K\u00f6zepesen s\u00falyos (2-es t\u00edpus) esetben egy \u00e9s k\u00e9t \u00e9ves kor k\u00f6z\u00f6tt, kev\u00e9sb\u00e9 s\u00falyos esetekben k\u00e9s\u0151bb illetve ritk\u00e1n m\u00e1r feln\u0151tt korban jelentkeznek az els\u0151 jelek. A betegs\u00e9g diagn\u00f3zis\u00e1t genetikai teszt alapj\u00e1n lehet meg\u00e1llap\u00edtani, amennyiben az izomvizsg\u00e1latok sor\u00e1n az alapos gyan\u00fa felmer\u00fclt.<\/p>\n\n\n\n<p class=\"has-text-align-right wp-block-paragraph\"><strong>(karpatalja.ma)<\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"<p>A K\u00e1rp\u00e1talja.ma \u00fajs\u00e1g\u00edr\u00f3i megl\u00e1togatt\u00e1k azt a mez\u0151gecsei csal\u00e1dot, akik v\u00e9gs\u0151 k\u00e9ts\u00e9gbees\u00e9s\u00fckben gyermek\u00fck megment\u00e9s\u00e9\u00e9rt a k\u00f6z\u00f6ss\u00e9gi oldalakon k\u00e9rtek seg\u00edts\u00e9get. <\/p>\n","protected":false},"author":12,"featured_media":26151,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[4000,41,594,31,11,592,25],"tags":[888,16956],"class_list":["post-26150","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-actual-hu","category-cikkek","category-egeszseg","category-karpatalja","category-kiemelt-tema","category-tarsadalom","category-videok","tag-betegseg","tag-sma"],"_links":{"self":[{"href":"https:\/\/life.karpat.in.ua\/index.php?rest_route=\/wp\/v2\/posts\/26150","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/life.karpat.in.ua\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/life.karpat.in.ua\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/life.karpat.in.ua\/index.php?rest_route=\/wp\/v2\/users\/12"}],"replies":[{"embeddable":true,"href":"https:\/\/life.karpat.in.ua\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=26150"}],"version-history":[{"count":0,"href":"https:\/\/life.karpat.in.ua\/index.php?rest_route=\/wp\/v2\/posts\/26150\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/life.karpat.in.ua\/index.php?rest_route=\/wp\/v2\/media\/26151"}],"wp:attachment":[{"href":"https:\/\/life.karpat.in.ua\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=26150"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/life.karpat.in.ua\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=26150"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/life.karpat.in.ua\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=26150"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}